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BILD 38: Dementia, Science & Society: Government & NGO Resources

US Dept of Health & Human Services - National Institutes of Health

Brain Initiative  https://www.braininitiative.nih.gov/

The Brain Research through Advancing Innovative Neurotechnologies® (BRAIN) Initiative is aimed at revolutionizing our understanding of the human brain. By accelerating the development and application of innovative technologies, researchers will be able to produce a  dynamic picture of the brain that, for the first time, shows how individual cells and complex neural circuits interact in both time and space.

National Institute on Aging  (NIA)  https://www.nia.nih.gov/

NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. NIA is the primary Federal agency supporting and conducting Alzheimer's disease research.

National Institute of Mental Health (NIMH)  https://www.nimh.nih.gov/index.shtml

The National Institute of Mental Health is the lead federal agency for research on mental disorders.

National Alzheimer's Coordinating Center  https://www.alz.washington.edu/

The National Alzheimer's Coordinating Center was established by the National Institute on Aging/NIH (U01 AG016976) in 1999 to facilitate collaborative research. Using data collected from the NIA-funded Alzheimer's Disease Centers (ADCs) across the United States, NACC has developed and maintains a large relational database of standardized clinical and neuropathological research data.

California Department of Aging

The California Department of Aging (CDA) administers programs that serve older adults, adults with disabilities, family caregivers, and residents in long-term care facilities throughout the State. The Department administers funds allocated under the federal Older Americans Act, the Older Californians Act, and through the Medi-Cal program.

https://www.aging.ca.gov/

Professional Guidelines

Moore A, Patterson C, Lee L, Vedel I, Bergman H; Canadian Consensus Conference on the Diagnosis and Treatment of Dementia.
Can Fam Physician 2014 May;60(5):433-8. PMID: 24829003
Goldman JS, Hahn SE, Catania JW, LaRusse-Eckert S, Butson MB, Rumbaugh M, Strecker MN, Roberts JS, Burke W, Mayeux R, Bird T; American College of Medical Genetics and the National Society of Genetic Counselors.
Genet Med 2011 Jun;13(6):597-605. doi: 10.1097/GIM.0b013e31821d69b8. PMID: 21577118
Williams JW, Plassman BL, Burke J, Benjamin S
Evid Rep Technol Assess (Full Rep) 2010 Apr;(193):1-727. PMID: 21500874
Hort J, O'Brien JT, Gainotti G, Pirttila T, Popescu BO, Rektorova I, Sorbi S, Scheltens P; EFNS Scientist Panel on Dementia.
Eur J Neurol 2010 Oct;17(10):1236-48. doi: 10.1111/j.1468-1331.2010.03040.x. PMID: 20831773

International Organizations

Alzheimer Europe  https://www.alzheimer-europe.org/
  • a non-governmental organisation (NGO) aiming to provide a voice to people with dementia and their carers, make dementia a European priority, promote a rights-based approach to dementia, support dementia research and strengthen the European dementia movement
European Alzheimer's Alliance   https://www.alzheimer-europe.org/Policy-in-Practice2/European-Alzheimer-s-Alliance
  • The EAA is a non-exclusive, multinational and cross-party group that brings together Members of the European Parliament to support Alzheimer Europe and its members in making dementia a public health priority in Europe.

World Health Organization

Member States are urged to build comprehensive, multisectoral public policy responses to improve quality of life, enhance equitable access to services and reduce stigma and social isolation for people with dementia and their carers. A new WHO publication assists Member States in formulating this response, through a multiphased approach.

The Global Dementia Observatory (GDO) is a data and knowledge exchange platform that offers easy access to key dementia data from Member States across the following three domains: policies, service delivery, and information and research.